CDKL5 - Rett Register

International CDKL5 Disorder Registration Form

In order to participate in this exciting project, please provide the following details.

Family details
First Name:

Last Name:

Name of your child with CDKL5 disorder:

Your child's date of birth:

What is your child's CDKL5 mutation:

How did you hear about us
Telethon Kids Institute website (telethonkids.org.au/cdkl5)

International Foundation for CDKL5 Research

CDKL5 UK

Other website/support association

Facebook

Conference

Family gathering

Healthcare professional/clinic

Other

Contact details
Mobile Phone:

Home Phone:

Work Phone:

Email address:

Street:

Suburb/Town/City:

Country:

State/Province/Territory/County:

Post code/ZIP code: